So how do we get through the day without feeling defeated constantly? I've found a number of things that help me cope.
First, I optimize my medications as much as possible. This means listening to my body, avoiding over-medicating, and talking to my doctor before enacting any changes. More is not necessarily better. It takes patience to find the right cocktail, but it's worth it in the end. My doctor went through a lot of training and even though I know my body better than anyone, my doctor has knowledge that I don't. Teamwork is essential.
Second, I try to get plenty of rest. If I'm not well rested, not only will I pay for it physically, but emotionally as well. If I'm having difficulty sleeping at night, I talk to my doctor and work to find a solution. Otherwise, eventually my body is going to suffer in a number of ways due to sleep deprivation. I already have PD, I don't need additional issues.
Third, exercise is crucial. I always try to do something, anything, whenever I can. Tai chi, water aerobics, modified yoga, light weight lifting, walking, even singing! (I've got to work those throat muscles. And I'm a brilliant singer…but only in my car for some reason.) Exercise has great benefits both physically and emotionally.
Fourth, I really watch what I eat and when. This is possibly the hardest, as it requires a great deal of discipline. It's easy to reach for the candy bar instead of the apple, but I fight the urge and try to eat the right thing. I'm pretty successful 90 percent of the time, and during that 10 percent when I "cheat," I just enjoy it, and then get back on track. What I've personally learned is that a good diet makes a huge difference in how I feel. The better I eat, the better I feel. And I prefer to feel good as opposed to feeling bad, no matter how tempting that extra slice of cheesecake may be!
Fifth, I always find time just for me. Selfish? Absolutely. But I deserve it. Sometimes it's a nap. Sometimes, it's having a Blockbuster weekend. I allow myself some time each and every day that's just for me and me alone. It helps me clear my mind, let go of my worries, and just enjoy some quiet time. Or not so quiet time. Sometimes I crank the iPod and let 'er rip!
Lastly, I use humor as much as possible. If I can't laugh at myself as I drop food down the front of my newly clean shirt, or when I fumble trying to get the key into the door lock, then I'll simply go insane. I've "gone" a lot of places in my life, but "going" insane isn't high on my priority list. So I try to keep my sanity and laugh at myself as much as possible. Plus, it helps other people be more comfortable around me, especially when I'm struggling with something.
You'll find your own strategies for dealing with PD. These are just a few that work for me. I figure PD is difficult enough on it's own, so I try to simplify the rest of my life as much as possible. After all, don't we deserve it?
