It is important to note as 2007 is approaching that there are many Parkinson's organizations to turn to for help, or to volunteer your time. Some of their goals include:
- Advocating for a cure
- Raising funds for research
- Providing education
- Reaching out to the PD communities in their states or regions
I would like to tell you about one of the smaller organizations with which I have experience. I affectionately refer to it as the "little engine that could." This organization is devoted to increasing the quality of life of those with PD, their families, and their caregivers. It is, in my opinion, equally important to be "working so no one is isolated because of Parkinson's", as well as it is to work on advocacy and research.
The organization I am referring to, founded by and presided over by Jo Rosen, is the Parkinson's Resource Organization (PRO), located in Palm Desert, Calif. I live in Penn. So how did I find out about PRO? I was attending a PD forum in Washington, D.C. a few years ago, and PRO had a display table like the other groups in attendance. I took a copy of their newsletter and signed up to be on the mailing list.
Upon opening the most recent issue of the newsletter I find on the second page information for support group, caregiver, and educational meetings. But wait, I am here in Penn. How can this organization help me?
Well, I could fill up page after page listing the many articles in the PRO newsletters that are so helpful, informative, and timely. This is a great resource for "working so no one is isolated because of Parkinson's." They really do cover daily living, because not only are there PD articles, but you will also find pieces like "Getting Your House Ready to Sell." (I learned how prospective buyers would have a difficult time envisioning my home being their home through all my clutter).
If you want to read more about this topic and many others follow this link: www.ParkinsonsResource.org.I want to say a few words about the founder and president of PRO. I have not yet had the pleasure of meeting Jo Rosen in person, though we have talked on the phone and emailed. My impression of her is of a hardworking (she works too hard I sometimes think), dedicated, generous, and delightful woman. Someone you would like to know. I am so impressed with her and appreciative of all she does in and for the PD community that I donated copies of a book I had written to be used to raise funds for PRO.
In closing, I just want to remind you as 2007 is upon us, that there are many organizations both large and small that are willing to help you. Whether it be getting started in advocacy, or "working so no one is isolated because of Parkinson's," there are people looking out for you.
In gratitude to Jo Rosen, I just want to start the New Year with Parkinson's Resource Organization front and center. Thank you, Jo.
