It's easy to see why patients diagnosed with Parkinsonism are unsatisfied. Patients want more details, but physicians may have few to offer. What can a patient do? You can ask questions like:
- What does the term Parkinsonism mean to you?
- What future diagnoses could Parkinsonism develop into?
- What are the odds of each of those diagnoses?
- Are you ready to rule any of these out now, given my current symptoms?
- What can I or should I do now?
- What is our strategy?
Certainly, you are asking these questions to educate yourself and understand—not corner your physician.
You and your movement disorders specialist will take a dual course of action. First, he or she will likely prescribe some medications and other therapies to address your symptoms. Second, you and your specialist will measure your response to those therapies to further diagnose your Parkinsonism. You may have MRIs, blood work, and other tests.
You can also do your research, and learn about Parkinsonism. Some helpful online resources include:
MayoClinic.com This site provides a basic understanding of Parkinson's Plus.
Parkinson Disease, Parkinson-Like, Parkinson-Plus, Atypical Parkinson Disease, Parkinson Syndrome, Parkinsonism This article from the National Parkinson Foundation provides more in-depth information.
Parkinson-Plus Syndromes by Dr. Arif Dalvi. This publication is an overview for medical professionals.
As a patient, you should understand that neurology attracts some of the brightest minds in health care. It is likely that neurology, and it's close relative psychiatry, are going through a renaissance right now. History and the medical texts will judge that better in hindsight. Nevertheless, you're probably unsatisfied with this apparent renaissance if you are contending with the vague diagnosis of Parkinsonism.
For now, work patiently with your movement disorders specialist. He or she wants to find answers to your questions almost as bad as you do. They are unsatisfied with Parkinsonism also.
