If you ever need to go into the hospital or a care facility there is a very helpful form you should complete and give to the doctors and nurses. Parkinson’s Resources of Oregon has an excellent form Critical Information for Caring for the Parkinson's Patient.
This form, although meant for your stay in a hospital or care facility, should be read by everyone who plays a significant role in your life. It details what Parkinson’s disease is and lists some of the characteristics. The importance of the timing of your medications is duly noted as well as side effects and drug interactions. The role nutrition plays in PD and when you take your meds is also included.
There are many websites, like the above, that provide help and information for the person with Parkinson’s and their families and friends. You can be pro-active with your condition so it does not become your life.
The Patient Advocate Foundation is a good source to access. They support and speak out for patients. You have to speak out for yourself if at all possible. It is the way to not only have control over your life but also shows people that you know what you need and when you need it. For example, you need your meds the same time each day.
Although differing in number and type of places you can contact for information, your local communities have resources to consider. Adult day care could be the solution for some people, as opposed to going in a care facility. My city has a non-profit organization that helps people to live independently. They help with housing, financial aid, transportation, medical care, personal assistance, adaptive equipment, physical fitness, education, community access, employment, and legal needs.
Remember there is help out there for you. Granted some areas may have more to offer in the way of help than others. However, to find out what is available in your area and to access it is an important step forward. You can play a vital role in managing your Parkinson’s disease.
